Articles About LAAP

Linda,
I just wanted to tell you, THIS IS OUTSTANDING....YES, OUTSTANDING.....what a wonderful idea.....I'm just beaming with pride and joy to see what you are doing.....YOU GO GIRL!! Let me know if there is anything I can help you with...I'm going to post this to a private LLMD list that I am on....they need to see this and refer their patients to you.....This is THERAPY....excellent...
Angel Huggzz
Linda or Angel

Linda -
      Good for you! I know how devastating Lyme is, particularly when it also attacks the brain. I know how hard it must be for you to find the energy to re-invent your career--and particularly to do it in such a way as to help others with the disease.
      Five years ago, at the height of a 34-year career as a professional weaver/designer/instructor, I was also bitten by an infected tick. I too considered suicide, particularly when the doctors and specialists refused to look at Lyme as the cause of my symptoms which included brain and heart damage, nerve damage and the loss of most of my manual dexterity and sense of touch. All encompassing pain and fatigue controlled my life. I could no longer weave or run my business and lost if all. A diagnosis however, did not bring about a cure, only an acknowledgement that I really did have Lyme.
      I am trying to find a way to put my creativity and design skills to work within the limited energy, pain and brain problems I have. I am struggling with building skills in watercolour and acrylic painting which is difficult without the wonderful dexterity that I so took for granted. But I will keep trying.
      I wish you all the best with your plans and I hope that your health improves.
Diane

Hi there,
Im also a lyme sufferer and think that what your doing is fantastic. more power to you to do this and keep fighting the lyme but not letting the lyme get to you. :) I will send you my story in a nut shell and a picture. I never take a picture since I hate to look at myself but for your cause I will. That is how strong I feel about what your doing.
I also wanted to ask you about your protocal for lyme. not familier with this and would love to know about it and let my friend know about it. he is loosing hope and he is in real bad shape. Hospitalized for three months with a colapsed lung and even a 3 week coma. They had to remove 1/4 of his r lung and now he is finally at home and is under oxygen. He lives in Conneticut. I live in redlands, calif. Where aparently to 8 dr. I saw said lyme does not exist here in so calif. I cant believe there are sooooooo many ignorant MD's out there. The only one that I saw that said absolutly there is lyme in so. calif was a physicain assistant.
I would like to know about the protocal or maybe where I can read about it. I will google it and see if anything comes out of it.
Im under a holistic treatment for a year now. very very expensive but I think it is helping slowly. I have extreme dizzy spells to the point that I almost pass out. cant go to stores etc. Im a wife, mother and a lost person in this world. I cant be a good wife, nor a good mother to my three children. my little one has never known me to be 100% and asks me every day, mommy is this a good day or are you tierd, sick, or have headaches? Its horrible. HATE it and want it gone NOW! Im sure you understand that. I see a dr. by the name of dr. tobin watkinson in so. calif. He treats me with bio electrical sprays. It changes the cellular structures and you do herx on them but i could not tollerate the antibiotics. my lyme dr sent me to this dr. he is a bio chemist and many other degrees. sorry to go on. I just wanted to say hello and I think what your doing is fantastic. take care and God Bless you and your ventures... sincerely, Therese

Hi Linda,
     I am the director of the attached lyme conference in Florida. I love what you are doing. Is there a way that we can promote or advertise your project for you? We have over 100 physicians/healthcare workers/patients coming. Dr. Fallon, Jones, Jemsek etc are drawing quite a crowd. I also can provide you with lots of great stories...some from my own family. Please pass the word around about the event and let me know if I can be of assistance to you.
Blessings, Pamela Marks, RN Program Director Lifelyme of FL

Dear Linda,
This is the exact definition of a hero. Stand in front of what life give us and transform it in a beautiful thing. Linda, you are a hero.
Jean-Louis

Hi Linda,
Great story! Congrats...your hard work and dedication are rewarded. The portraits have a deep feeling which you have managed to communicate visually. I hope it helps the spirits of the Lyme disease sufferers. I feel honored to know you.
Blessings,
Robert and Lenice

Wow, Linda!
See what good is coming out of something so bad! God is using you and this terrible disease to create some beautiful things. (Ever notice the core meaning od "disease?" Dis = not, so it is "not at ease." May you come to terms and be at ease as you fight this disease!!!!
Love, Holly
P.S. May this new year be one of continued healing and growth for you.

LYME AWARENESS ART PROJECT (LAAP) GAINS NATIONAL RECOGNITION - Linda Marcille, founder of LAAP explains her project in the following words: "LAAP was born out of my own struggle with Advanced Neurotoxic Lyme Disease. Last month, the magazine Public Health Alert did an announcement about the Lyme Awareness Art Project and we were thrilled. Today it came as a total shock when they told us they were doing a cover story on my LAAP Faces of Lyme show with a color photo of me working on one of the oil paintings. The Lyme Awareness Art project is well on its way to reaching its goal of raising Neurological Lyme awareness." Congratulations on all of your hard work Linda! Read more.              -Vermont Arts Council

Dear Linda,
You are simply amazing! I admire you so much. Your new painting and your way of including other's, their struggles and drawing inspiration brings tears to my eyes. You are so incredible!
Thanks for showing me,
Lots of love,
Susan

I must say, I am so impressed with what you're doing. It's truly a beautiful way to bring out Lyme awareness and hopefully with you opening this new avenue, more "experts" will get the picture....pun intended.
My name is Dannie Cade and I'm a Lyme survivor. In fact, here in Kamloops I am referred to by our Lyme support group as the "poster child". Like you, I was horribly sick and becoming suicidal thanks to the excruciating and debilitating pain but after 4 - 1/2 years of struggling for an answer I found it and was lucky enough to find the best Lyme Literate Doctor ever. I still need to do the recovery part of my story but it's really simple. After 2 years of non stop antibiotic combinations as well as doing all I could on my own to help my recovery I was able to reclaim approximately 95% of my previously fully functional life. It's now been 4 - 5 years since then and I'm still doing great! I'm currently in a classic rock band as lead singer/trumpet player and frontman and am starting another band as well. I book keep for my husband, baby-sit my granddaughter and am a freelance writer. Never is there a dull moment and I still enjoy going for long walks (after I spray down from the waist down with bug dope!) year round.
Sincerly,
Dannie

Hi Linda
I too have Lyme disease. Your project sounds very exciting, I worked in the veterinary profession for over 30 years. I worked as a veterinary technician/cat groomer and have not gone camping nor do I walk in the woods. I live in the middle of town and do enjoy gardening in my small yard. I can remember removing hundreds of small ticks from a cat with my bare hands....and yes I had cuts and scratches on my hands and yes there were squashed ticks. I have not worked in three years, I have had this for 10 years and have been labelled with MS. My condition improved and things started getting worse with menopause In Canada (I live in Nova Scotia) they seem to know very little about Lyme. I have had positive IGenex testing and 31 of 38 symptomes on a list from Dr D in Maine I was fortunate to get a doctor in Maine who says yes you have chronic Lyme I knew that some time back I am fighting WCB as I know I got this at work
Lyme has many faces
Take Care
Brenda

Linda,
As an artist from New Hampshire I applaud what you are doing. Jeff is my nephew and we are so proud of him. He and his family have been through so much fighting this dreadful disease.
Thank you.
Jane

Oh my goodness!!! I am SO proud of you and your work. Both the sketch and the painting in progress (and what you wrote) are beautiful! What you are doing is JUST what is needed - this inspiration GIVES HOPE and COURAGE to so many who really need this. I honor you and I am so humbled that you would work so well and in an innovative way with this painting. I am glad you choose the article to go with the painting that you did - my son (Michael) was decisive in convincing me to start writing again, and actually doing it was the beginning of a new adventure in my life, a life I thought had seen the end of it's significance.
Thank you again: - Glen

Praise For LAAP

Linda,
This is absolutely beautiful!
I am in awe of your talent and your mission! I will put the PHA behind you 100% to try and get the word out...many doctors, patients and corporate businesses read the PHA and advertise with us...maybe they will take interest in your venture!
Have you thought about contacting local colleges that have art programs as well as medical programs and see about giving a presentation about using the medium of art to raise medical awareness?
Also malls and shopping centers often allow public displays of art shows...May is LD Awareness month...maybe you could do some public shows in May?
M y mind is reeling...and praying that we can get you some financial backing! This is an incredible idea!
I would like to submit my story...if it can help.
Thanks,
Dawn

Reading the story of Glenroy, I just can't stop my tears because it is just the same as my husband's story. My husband was doing landscape photography in California, as a hobby , his profession is a social worker with a masters degree. Today life is so different for us. His lyme has affected his CNS, causing him to look like he has Parkinson's, but when they did a Neuro test,it wasn't Parkinson and his Lyme test was positive. We don't know how long he has had it, only we know he had been misdiagnosed, many times, we have been going to the same trouble and pain that most people go through with this killer. At present,we went for six weeks to a naturopathic treatment program , his memory has returned, his affect has improved, he is able to walk without assistance, able to read and study, and do his personal care. We live day by day counting our blessings. Physically he has to go with his aches and pains, slowness, poor coordination, but at least we can have good conversations. He is looking forward to doing something with his large slide collection, but he needs information.Can you give us some
guide lines.?
Thank you very much for the story. At least we are not alone. We are brothers and sisters in this battle.
Sincerely, Herminia Valentin